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Patient Journeys.

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Patient Journeys.

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About patientjourneys.org

If you are one of the many people living with a rare disease you probably know the challenges with getting an accurate diagnosis and the right treatment. Patientjourneys.org was created to help better understand the process of rare disease diagnosis and to provide information and insights to members of the rare disease community.

This site is not intended to provide medical advice or to suggest that any treatment mentioned is safe or efficacious for any disease or condition

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